Tuesday, January 16, 2007

Boy must live without giggling

Edward Davies must never laugh or cry — because it could kill him.

Strong emotion triggers violent sickness, which could make him choke.

Edward Davies

Parents Rachel and Nick have to stop 11-month-old Edward giggling whenever he breaks in to a smile.

Edward suffers from rare genetic disease Cornelia de Lange syndrome that affects just 400 people in the UK.

Valves in his lungs do not work, triggering sickness if he laughs, cries or lies on his back.

1 comment:

Anonymous said...

my nephew also one of the people suffers from this disease..even though he can't speak,walk, but i love him the most...i love him so much...